Oncology Appointment

Calleigh had her first official oncology appointment in Greenville today.  It went well and we were pleased with how the doctor took time to answer all of our questions.  Her case of medulloblastoma is classified as "standard risk."  Even though Calleigh's tumor was completely removed we have to "mop up" any cells that are left floating around.  So Calleigh will undergo radiation treatments and then chemotherapy.  We are scheduled to meet with the radiation oncologist tomorrow afternoon to learn when her treatments will start but we anticipate that it will be within the next couple of weeks.  She will receive 31 radiation treatments with one weekly chemo treatment during that time.  All of this is expected to be outpatient.  Following the radiation, she will have about a 5 week break and then we will start chemotherapy.  She will have 9 cycles of chemo that will vary in length. For each round she will have to be hospitalized for 1-3 days with the initial dose in order to give her fluids and monitor her condition.  She would also of course be hospitalized for any infections, fevers, etc.
We received a lot of information today and my head is spinning a little!   Lance and I talked as we ate good behavior ice cream again this afternoon and we both feel at peace with this.  We have no idea what next year will look like for us and for people who like order and concrete plans this is a little difficult for us.  (I've already created a tabbed notebook to keep myself organized!)  We will get through this because we have to.  Calleigh is my whole life and I know I talk about her to the point of being annoying.  Sorry coworkers and friends, but she's the best thing I've ever done!  I will fight for her with every breath in my body.
We are hoping to get away for a few days before her treatments after having to cancel two vacations we had planned this summer.  :(  I think we could all use a little time on the beach.  We have one standing appointment next week and two more to be scheduled.  Please pray for us during the time of uncertainty and as we explain to Calleigh about what comes next for her.  I've never been so thankful for my education and experience working with children.  It's honestly prepared me to help her understand, push her when needed, and be the mom she needs right now.
Thank you for all who pray for her all over this country and even in other countries.  Being bathed in prayer has certainly brought us a measure of peace and sense of security.  We appreciate each one of you who loves her and have loved on us during this time.